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Liam Nagi To the list of funds

21-months old Liam was diagnosed upon birth with type-1 SMA, a rare and harsh degenerative disease. Liam cannot stand, crawl, walk or even raise his head. The only chance to save Liam's life is Zolgensma, a drug that would replace the defective gene in his body. The cost of the drug is $2.2 million.

21-months old Liam was diagnosed upon birth with type-1 SMA, a rare and harsh degenerative disease. Since the age of two months, he has been receiving shots into his spine every four months, but the treatment has proven only partially effective. 

Liam currently has difficulty swallowing and eating. He must receive respiratory assistance during the night, cannot stand, crawl, walk or even raise his head. The slightest illness, such as the flu or pneumonia, is life-theratening for him.

The only chance to save Liam's life is Zolgensma, a drug recently-approved by the FDA and which has shown great promise worldwide. The drug would completely replace the defective gene in his body.

As the drug has been shown effective up to the age of two, every day is critical.

The cost of the drug is $2.2 million.

 

 

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