1 year old Josh and 2 year old Benny Landsman were born with Canavan disease, a devastating disease that effects the brain. They currently are unable to do any of the regular activities children their age can. They are undergoing extensive treatments and are supported by numerous supportive devices. They...
HE FAMILY | Jennie and Gary Landsman are
racing against time to save their sons,
Benny (age 4) and Josh (age 3), who suffer
from Canavan disease, a genetic brain disorder.
Without intervention, the boys will never sit, crawl,
walk or speak. They will eventually develop
seizures, lose their eyesight, require feeding tubes,
and possibly die by early adolescence.
When doctors said that nothing could be done
for the boys, Jennie and Gary went on a
desperate search for a cure and found
renowned neuroscientist, Dr. Paola Leone,
THE CURE | Jennie and Gary were elated to
learn of Dr. Leone’s work in gene therapy which
focuses on penetrating cells directly affected
by Canavan. Dr. Leone agreed to help but
private funding would be needed. 2 1/2 years
later, thanks to community outreach,
fundraising and awareness, $4.5 million has
been raised by the Landsmans and other
Canavan families. We are nearing the finish line
but additional funds are needed NOW to keep
the trial on track for this summer. Delays are not
an option. We need your help as $1,200,000 is
needed immediately. This therapy also has the
great potential of treating other brain disorders.